What we’re about
Hello and welcome! We are an online peer-led support group for those living with kyphosis and its long term health implications. My name is Carrie, and I had my spine fused due to moderate/severe Scheuermann’s disease when I was 15 years old. I created this group with the goal of fostering a community that is supportive and kind, as kyphosis can be such an isolating and disabling disease. Whether you have only recently been diagnosed or had spinal fusion surgery 20 years ago, this group is for you.
We will meet biweekly on Sundays at 10am PST over zoom. We will share our stories of struggle and triumph, hold space to express painful emotions for those who need it, share what has helped us live more comfortable lives, and find humor in it all when we can. I hope you’ll join us!
